What do you know about PNH, or Paroxysmal Nocturnal Hemoglobinuria? Learn more here, from what researchers are learning about its origins to treatments being researched now from this session at the Rockville Patient and Family Conference: https://aamds.org/webinar/2025-rockville-patient-and-family-conference-session-pnh | Aplastic Anemia and MDS International Foundation

Paroxysmal Nocturnal Hemoglobinuria (PNH) is a rare blood disorder characterized by the destruction of red blood cells, also known as intravascular hemolysis. Dr Ahmad discusses how ongoing hemolysis is the root cause of many of the signs and symptoms of the condition, including fatigue, shortness of breath, trouble swallowing, abdominal pain, dark-colored urine, and in men erectile dysfunction or ED. PNH can also cause potentially life-threatening consequences like anemia, blood clots which can

The primary symptom of PNH is having the sudden need to urinate, usually at night and it comes out dark or reddish in color. Alarming, we know. But what exactly is going on inside your body to cause this and other PNH symptoms? It helps to understand what’s known as the “complement system.” Here we talk through how it’s supposed to work, and what goes haywire with it in PNH. https://bit.ly/3F8nzRr | HealthCentral

Paroxysmal Nocturnal Hemoglobinuria (PNH) is a rare blood disorder characterized by the destruction of red blood cells within the blood vessels, also known as intravascular hemolysis. For Brittany, it took several procedures and almost a year to get diagnosed. After discussing all of the options, Brittany and her hematologist discussed a management plan that would be a good fit for her. Learn more in the video. Thank you to Alexion, AstraZeneca Rare Disease, for partnering with us on this progra